The Cystic Fibrosis Foundation has lead the pursuit for a cure since 1955. With the commitment and generosity of supporters, including patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations, and staff, the Cystic Fibrosis Foundation and the research they sponsor are making a difference.
Information on this page is courtesy of the Cystic Fibrosis Foundation.
About 1,000 new cases of CF are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
People with CF can have a variety of symptoms, including:
very salty tasting skin;
persistent coughing, at times with phlegm;
frequent lung infections;
wheezing or shortness of breath;
poor growth/weight gain in spite of a good appetite; and
frequent greasy, bulky stools or difficulty in bowel movements.
Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the Unites States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s, and beyond.